Ahmed Alsaadi

Consultant Ophthalmology Surgeon

Zayed Military Hospital

Abu Dhabi, UAE

Aisha Al-Shamsi

Consultant Pediatrician, Division of Medical Genetics and Metabolic Disorders

Department of Paediatrics, Tawam Hospital

Al Ain, UAE

Aishah Saeed Alzahmi

Roads and Transport Authority

Dubai, UAE

Alan Mulvihill

Consultant Ophthalmology

Al Jalila Children’s Specialty Hospital

Dubai, UAE

Alanoud Al Ansari

Senior Attending, Adolescent Medicine

HMC, Qatar

Doha, Qatar

Alexandra Heumber Perry

Chief Executive Officer

Rare Diseases International

Geneva, Switzerland

Amal Al Tenaiji

Metabolic Genetics Consultant

Sheikh Khalifa Medical City

Abu Dhabi, UAE

Aman Sohal

Consultant Pediatric Neurologist and Neurophysiologist

Al Qassimi Women's and Children's Hospital, Sharjah

Dubai, UAE

Asia Ahmad Almulla

Pediatrics Specialist

University Hospital Sharjah

Sharjah, UAE

Asma Said

President of Rare Disease Family Support Group

Muscat, Oman

Ayesha Al Mheiri

Pediatric Rheumatologist

Sheikh Khalifa Medical City

Abu Dhabi, UAE

Bashayer Alnuaimi

Consultant physician in Pediatric Rheumatology

Tawam Hospital

Al Ain, UAE

Bassam Ali

Professor Genetics and Genomics Medicine

College of Medicine and Health Sciences, UAEU

Al Ain, UAE

Buthaina Al Adba

Senior Attending Physician - Pediatric Rheumatologist

Sidra Medicine

Doha, Qatar

Dalal Al Dhabyani

Director of Operations

UAE Rare Disease Society

Dubai, UAE

Dalia Raa

Clinical Genetic and Metabolic Fellow

Tawam Hospital

Al Ain, UAE

Ebtisam Hamasha

UAE

Eiman Jassem Al Ali

Senior Diagnostic and Evaluation Specialist

Ministry of Community Development

UAE

Eman Taryam Alshamsi

Consultant and Acting Head of Pediatric Hematology Oncology Department

Al Jalila Children's Hospital

United Arab Emirates

Fadiah Alkhattabi

Head of Employee Wellness Department

King Faisal Specialist Hospital & Research Centre

Riyadh, Saudi Arabia

Fatima Abdulaziz

Pediatric Clinical Genetic Consultant

Al Qassimi Women's and Children's Hospital

Sharjah, UAE

Fatima Al Ahbabi

Consultant in Paediatric Pulmonology

Tawam Hospital

Al Ain, UAE

Fatima Ismail

Assistant Professor of Pediatrics, College of Medicine and Health Sciences

United Arab Emirates University

Al Ain, UAE

Fatma Al Jasmi

Acting Dean, Chair of Genetic & Genomic department

College of Medicine & Health Science, UAE University, Al Ain

Al Ain, UAE

Fatma Aljassim

Consultant Pediatric Pulmonologist

American Hospital

Dubai, UAE

Feda Mohamed

Post-Doctoral Researcher

College of Medicine and Health Sciences, United Arab Emirates University

Al Ain, UAE

Fida Yousef Diyab

Caregiver

UAE

Fouzia Alblooshi

Deputy CEO

Dubai Club for People of Determination

Dubai, UAE

Ghadeera Al Mansoori

Consultant Cardiologist, Director of Adult Congenital and Genetic Heart Disease Program

Sheikh Shakhbout Medical City

Abu Dhabi, UAE

Grace Nehme

Pediatric Hematology Oncology Consultant

Clemenceau Medical Center Dubai

Dubai, UAE

Hanadi Algabeesh

Senior Clinical Dietitian

Al Jalila Children's Specialty Hospital

Dubai, UAE

Heba Salah Elabd

Genetic Consultant, Al Jalila Children's Speciality Hospital

Faculty of medicine Ain Shams University

Dubai, UAE

Hind Alrustamani

Social Counselor

Founder & CEO of Aman Lil Afia Clinic

Dubai, UAE

Hussain Maseeh

Social Empowerment Expert

Community Development Authority - Dubai

Dubai, UAE

Laura Margot Paquette

Genetic Counsellor

Abu Dhabi Health Services Company, SEHA

Abu Dhabi, UAE

Mahra Al Fattan

Clinical Genetics & Metabolic Fellowship Program

Tawam Hospital

Al Ain, UAE

Majed Mohammed

Advocacy & Scientific Affairs Manager

Friends of Cancer Patients (FOCP)

Sharjah, UAE

Malak Omran Eid

Charge Nurse of Pediatric Infusion Center

Sheikh Khalifa Medical City

Abu Dhabi, UAE

Manal Mustafa

Consultant Pediatric Endocrinologist

Al Jalila Children's Hospital

Dubai, UAE

Maryam Al Shehhi

Consultant Clinical Geneticist

Sheikh Khalifa Medical City

Abu Dhabi, UAE

Masooma Al Jasmi

Head of Nutrition section

Al Jalila Children's Specialty Hospital

Dubai, UAE

Mayed Alqassab

Member of the Youth Council of Dubai Club for People of Determination

Dubai, UAE

Meera Alqassab

Bachelor of Business in Marketing

Zayed University (ZU)

Dubai, UAE

Mohamed Babiker

Consultant Paediatric Neurologist

Al Jalila Children's Hospital

Dubai, UAE

Mohammad Fahed Abdullah

Consultant, Pediatric Hematology/Oncology

Sheikh Khalifa Medical City

Abu Dhabi, UAE

Mouza Saeed Rumaihi

Special Handling Manager

Dnata

Dubai, UAE

Muna Alhaway

Director of Blood Transfusion & Research Center & Nutrition Consultant

Emirates Health Services

Sharjah, UAE

Nadia Akawi

Assistant Professor and MSGM Program Director, Department of Genetics & Genomics

College of Medicine & Health Sciences, United Arab Emirates University

Al Ain, UAE

Nafisa Tawfiq

Chairperson – UAE Rare Disease Society

Head of organizing committee - 3rd International UAE Rare Disease Society Congress 2025

Dubai, UAE

Nandu Thalange

Consultant Paediatric Endocrinologist

Al Jalila Children's Specialty Hospital

Dubai, UAE

Nashmeya Abdulwahab Alfili

Trainer, Author of Stories about People of Determination and Visual Artist

Dubai, UAE

Nuha Al Zaabi

Metabolic Genetic Consultant

Fujairah Hospital

Fujairah, UAE

Omran Shorouq

Acting Charge Nurse

Pediatric Infusion Center, Sheikh Khalifa Medical City

Abu Dhabi, UAE

Rawhi Abdat

Psychologist

Ministry of Community Development

Dubai, UAE

Ruqaiah Saeed

Caregiver

Dubai, UAE

Saba Hamasha

UAE

Saeeda Almarzooqi

Professor of Pathology

College of Medicine & Health sciences, U.A.E University

Dubai, UAE

Said Souhila Maya

Patient advocate

Foundation MAIRA

Algeria

Samir Hamasha

UAE

Sara Almheiri

Neurodevelopment specialist

Department of neuroscience AJCH, Dubai Health

Dubai, UAE

Shaima Alhammadi

Senior Social Worker

Al Jalila Children's Specialty Hospital

Dubai, UAE

Shaima Khouri

Pediatric Pulmonology Specialist

Sheikh Khalifa Medical City

Abu Dhabi, UAE

Shamma Ahmad Lootah

Specialist Pediatric Rheumatologist

Al Jalila Children's Specialty Hospital

Dubai, UAE

Shamsa Abdulla Almheiri

Dubai, UAE

Sondus Alsharidah

Director of Pediatric Stem Cell Transplant Program

Ministry of Health Kuwait

Kuwait

Sonika Phulwani

Genetic Counsellor

M42

Abu Dhabi, UAE

Suad Alawar

Public Health Expert - MOHAP

Head of Family Health section

UAE

Zulf Mughal

Consultant in Paediatric Bone Disorders

Al Jalila Children's Specialty Hospital

Dubai, UAE